CompletedNot Applicable

Parenting Concerns in Patients With Cystic Fibrosis (MucoPar)

France52 participantsStarted 2019-09-25

Plain-language summary

The purpose of this study is to explore and collect the perceptions, expectations and needs of CF patients about parenting. This will be done in the context of several small groups of patients led by a psychologist who will ensure that all the participants express themselves; he will encourage them to develop their points of view, their divergences and their common points about what constitutes to be a parent. The collected information should make it possible to develop and propose adapted medico-psycho-social interventions, if necessary, in connection with patient associations

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: For patients * Have cystic fibrosis * Be a parent and raise or have raised at least one child * Being followed in one of the two adult CF centers participating in the study For CF patients' spouses \- Live with the CF patient participating in the study For both CF patients and spouses * Being an adult (at least 18 y.o.) * Have a good level of French and good speaking skills Exclusion Criteria: * For both CF patients and spouses * Psychiatric pathology (borderline state, bipolarity and other psychotic disorders) * Serious somatic disease not related to cystic fibrosis

What they're measuring

Identification of themes about parenthood in CF from groups

Timeframe: 2 years

Trial details

NCT IDNCT04133246

SponsorAssistance Publique - Hôpitaux de Paris

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2020-12-21

View on ClinicalTrials.gov More Cystic Fibrosis trials