Quality of Life in Patients With Auto-inflammatory Diseases (NCT03569644) | Clinical Trial Compass
CompletedNot Applicable
Quality of Life in Patients With Auto-inflammatory Diseases
France39 participantsStarted 2018-06-06
Plain-language summary
This qualitative interview-based study aim to build a tool to assess quality of life in patients (adults or children) suffering from 6 autoinflammatory diseases (FMF, TRAPS, CAPS, MKD, Still and PFAPA).
Who can participate
SexALL
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* Any patient (child and adult) with one of the 6 AIDs (FMF, TRAPS, MKD or CAPS, PFAPA or Still's disease) regardless of the activity of the disease. The diagnosis will have been made by the referring physician according to criteria specific to each AIDs
* Volunteer to participate in the study
* With at least one parent present at the consultation if it is a child under 18 years old
* For minors, agreement of the parents or their legal representative or one of the present parents
* Information for children as far as their age and condition allow
* Affiliation to a national health insurance.
Exclusion Criteria:
* patient or relative (according to age)refuse to participate.
* Bad understanding of French.
* Other chronic inflammatory pathology associated (example: Crohn's, SPA, uveitis, psoriasis ...)
What they're measuring
1
Qualitative evaluation of quality of life by interviews of patients and/or parents