The puropse of this non-interventional register and survey study is to identify the patterns of prescribed pain, anti-depressive and anti-anxiety medication and management of pain, depression and anxiety for people with haemophilia. The study will be conducted in the Nordic countries (Sweden, Norway, Denmark, Finland) and the aim is to cover the entire haemophilia population in the register part of the study.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Use of medication for pain, depression and anxiety (yes/no?)
Timeframe: Retrospectively 10 years
Annualised consumption of pain medications as assessed by filled prescription
Timeframe: Retrospectively 10 years
Annualised consumption of anti-anxiety medications as assessed by filled prescription
Timeframe: Retrospectively 10 years
Annualised consumption of anti-depressive medications as assessed by filled prescription
Timeframe: Retrospectively 10 years
Duration of pain medications as measured by expected doses of medicines.
Timeframe: Retrospectively 10 years
Duration of anti-depressive medications as measured by expected doses of medicines.
Timeframe: Retrospectively 10 years
Duration of anti-anxiety medications as measured by expected doses of medicines.
Timeframe: Retrospectively 10 years
Pharmacological and non-pharmacological treatments for management of Health-Related Quality of Life (HRQoL) impairment, including treatment of pain
Timeframe: Inclusion in survey study
Pharmacological and non-pharmacological treatments for management of HRQoL impairment, including treatment of anxiety
Timeframe: Inclusion in survey study
Pharmacological and non-pharmacological treatments for management of HRQoL impairment, including treatment of depression
Timeframe: Inclusion in survey study
The perspective and experience of HCPs with direct and frequent patient Contacts on the strategies for the management of HRQoL impairment, including treatment of pain at each Haemophlia Treatment Centre
Timeframe: Inclusion in survey study
The perspective and experience of HCPs with direct and frequent patient Contacts on the strategies for the management of HRQoL impairment, including treatment of anxiety at each Haemophlia Treatment Centre
Timeframe: Inclusion in survey study
The perspective and experience of HCPs with direct and frequent patient Contacts on the strategies for the management of HRQoL impairment, including treatment of depression at each Haemophlia Treatment Centre
Timeframe: Inclusion in survey study
Self-reported current and previous use of medications for pain
Timeframe: Inclusion in survey study
Self-reported current and previous use of medications for anxiety
Timeframe: Inclusion in survey study
Self-reported current and previous use of medications for depression
Timeframe: Inclusion in survey study
Social and physical activity level
Timeframe: Inclusion in survey study
Euro-QoL 5 Dimensions 5 Levels (EQ-5D-5L)
Timeframe: Inclusion in survey study
Patient satisfaction with current management of pain
Timeframe: Inclusion in survey study
Patient satisfaction with current management anxiety
Timeframe: Inclusion in survey study
Patient satisfaction with current management of depression
Timeframe: Inclusion in survey study
Patient satisfaction of received treatment for pain
Timeframe: Inclusion in Survey study
Patient satisfaction of received treatment for anxiety
Timeframe: Inclusion in Survey study
Patient satisfaction of received treatment for depression
Timeframe: Inclusion in Survey study