CompletedNot Applicable

National Survey of People With Haemophilia in Portugal

Portugal146 participantsStarted 2016-09

Plain-language summary

The purpose of this study is to implement a national survey to collect information regarding Portuguese people with haemophilia (PWH) on socio-demographic, clinical and psychosocial factors.

Who can participate

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Haemophilia A or B * Portuguese nationality Exclusion Criteria: * Acquired Haemophilia * Psychiatric or neurological deficit

What they're measuring

Health Related Quality of Life in Adults as assessed by A36Hemofilia-Qol

Timeframe: 1 year

Health Related Quality of Life in Children as assessed by Canadian Haemophilia Outcomes-Kids Life Assessment Tool

Timeframe: 1 year

Pain Intensity

Timeframe: 1 year

Pain Location

Timeframe: 1 year

Pain Duration

Timeframe: 1 year

Trial details

NCT IDNCT02870114

SponsorUniversity of Minho

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2017-05-22

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